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Items tagged with: LongCOVID


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News Release 26-May-2026:

"Mayo Clinic study details set of options family medicine physicians may consider to treat ME/CFS and long covid"

eurekalert.org/news-releases/1…

Paper:
annfammed.org/content/annalsfm…

#MEcfs #LongCovid @longcovid #PwME #ME #MyalgicE
@mecfs



Quote:

"Long COVID did not create medicine’s discomfort with invisible illness. It exposed a preexisting pattern that millions of patients had been navigating for decades.

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia, dysautonomia, POTS — these conditions share remarkable clinical overlap with Long COVID, and they share something else too: a history of being dismissed, minimized, and inadequately researched"

@mecfs @longcovid

#MEcfs #LongCovid #POTS #MedMastodon


Health is Political by Brittani James
“Long COVID Changed Everything”

blog.brittanijamesmd.com/p/lon…

Description from Science for ME @s4me update:

Good blog post by Family Medicine physician Dr. Brittani James on what illnesses such as #LongCovid & ME reveal about medicine's limits.

#pwme #mecfs @mecfs @longcovid



Study published in the Journal of Infectious Diseases estimated based on conservative assumptions that the total economic burden of Long Covid will exceed $8 billion between 2025 and the end of 2027. Despite this, both the Biden and Trump administrations have done little about Long Covid.
#COVID #LongCovid
theconversation.com/long-covid…


Orthostatic Intolerance Testing Made Clear: Tilt Table, Active Stand, and the Passive Stand

batemanhornecenter.org/orthost…

This blog post discusses orthostatic intolerance, a "hallmark feature" of ME/CFS and Long Covid, and the three tests used for diagnosis.

#MEcfs #LongCovid #pots @longcovid @pots @mecfs



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A repository of selected ME/CFS and Long Covid documentaries & shorts. Plus some current affairs reports, art films and archival footage

skywriter.blue/@nessau.bsky.so…

#MECFS #LongCovid #GreatestMEdicalScandal #MillionsMissing #May12th @mecfs @longcovid



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Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

academic.oup.com/ajrccm/articl…

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC


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ME Research UK attended remotely the International ME/CFS Conference 2026 ( May 7-8th).

Prof. Dr. Nina Babel’s presentation highlighted notable clinical and immunological similarities between long COVID and Post-Acute COVID Vaccination Syndrome (PACVS). tinyurl.com/3rv8nfje

#LongCovid #PACVS @longcovid






Het advies vd Gezondheidsraad van een week geleden had ik gemist: "Het is belangrijk dat er meer duidelijkheid komt over post-COVID."

De raad adviseert:
- langlopend onderzoeksprogramma
- evaluatie van zorg
- organisatie van zorg in regionale netwerken
-betere registratie en
- goede kennisuitwisseling.

Waarom heb ik het gevoel dat dit een oud advies had moeten zijn?/s

gezondheidsraad.nl/adviesonder…

@longcovid
#LongCovid #PAIS #niethersteld #CovidIsNotOver #Gezondheidszorg #HealthCare



The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

dutchnews.nl/2026/05/dutch-hea…

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid




Article from The Lancet in which "a group of bioethicists, clinician-scientists and people with lived experience with Long COVID argue that it is ethically imperative to conduct trials of disease-modifying treatments for Long COVID now."
#COVID #LongCovid
thelancet.com/journals/eclinm/…


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Hi I'm Stella, disabled trans woman. I opened a foundraise and I need your help to access lifesaving surgery.

Any donation and share is very appreciated. Thanks from the bottom of my heart to anyone will help me make this happen

💞❤️‍🩹💖

gofundme.com/f/help-stella-get…

#mutualaid #trans #fundraiser #disabled #DisabiltyJustice #LongCovid #genderaffirmingcare #healthcare #transrights #surgery

@pinksourcandy


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News Release 13-May-2026

Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
eurekalert.org/news-releases/1…

Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
dx.doi.org/10.1111/hex.70675

@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid #novid



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Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.

"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"

actionforme.org.uk/major-fundi…

This is good news! 🎉 More funding is still needed, but this is a good start.

I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.

@mecfs @longcovid

#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon


New research reveals chronic inflammation as potential key driver of long Covid, offering hope for 15 million Americans experiencing persistent symptoms. Groundbreaking study opens new treatment pathways. #LongCovid #Healthcare


NIH's RECOVER program to find treatments for long covid has frustrated patients and its first three clinical trials have all failed to show efficacy.

#LongCovid #research #medicine

thesicktimes.org/2026/05/12/re…


"Canadian professor Steve Wilcox has between 95 and 100% of students in his game design classes masking up with N95s after playing a simple game he designed called “The Haunted Woods.”"

thesicktimes.org/2025/05/06/lo…

#news #covid #LongCovid #videogames #GameDev

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