Health is Political by Brittani James
“Long COVID Changed Everything”
blog.brittanijamesmd.com/p/lon…
Description from Science for ME @s4me update:
Good blog post by Family Medicine physician Dr. Brittani James on what illnesses such as #LongCovid & ME reveal about medicine's limits.
#pwme #mecfs @mecfs @longcovid
What a mass disabling event revealed about medicine’s limitsBrittani James, MD (Health is Political)
The Emerge Australia Awards for Excellence in Journalism 2026
The winner for the ME/CFS award has recently been announced
Find links for the winning entry and the 6 other finalists here:
emerge.org.au/the-emerge-austr…
As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.
Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.
Read more: bit.ly/42bpC2D
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…bit.ly
From ME Awareness Week.
tinyurl.com/MEAW2026
The experience of cognitive dysfunction, ‘brain fog’, cannot be equated to the occasional forgetfulness and lapses in concentration experienced by healthy individuals.
How does 'brain fog' impact your daily life?👇
#mecfs #cfs #pwme #brainfog @mecfs
ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.tinyurl.com
This week, ME Awareness week 2026, ME Research UK are considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.
Today, the focus is on Brain fog (also known as cognitive dysfunction): bit.ly/42bpC2D
#brainfog #mecfs #cfs #pwme @mecfs
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…bit.ly
From ME Awareness Week.
tinyurl.com/MEAW2026
Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.
How does fatigue impact your daily life?👇
#mecfs #cfs #fatigue #pwme @mecfs
ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.tinyurl.com
Credit to themsbloke. A high-energy video that might require pacing!
He has multiple sclerosis himself rather than ME/CFS.
Note that the F word is used.
Press release from University of Otago (New Zealand):
"Chronic illness [ME/CFS] linked to hardship – study" (25 May 2026)
otago.ac.nz/news/newsroom/chro…
Open access research paper:
link.springer.com/article/10.1…
For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.
Today, the focus is on fatigue: bit.ly/42bpC2D
#mecfs #cfs #fatigue #pwme @mecfs
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…bit.ly
From ME Awareness Week.
tinyurl.com/MEAW2026
Unrefreshing sleep is a common issue in ME/CFS, where a full night's sleep, doesn't leave one rested. There can also be other changes in sleep quality/quantity/patterns.
How does sleep dysfunction impact your daily life?👇
ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.tinyurl.com
As part of ME Awareness week 2026, ME Research UK have put together a series of articles considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.
Today, the focus is on sleep difficulties: bit.ly/42bpC2D
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…bit.ly
From ME Research UK:
Whilst symptoms and comorbidities of ME/CFS are debilitating, the disease can be isolating due to factors such as disbelief from others and lack of accommodation. tinyurl.com/MEAW2026
How has ME/CFS impacted you?👇
ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.tinyurl.com
From @meresearchuk
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made, & challenges faced when investigating key symptoms of ME/CFS, a disease which affects over 400,000 people in the UK. Read more: bit.ly/42bpC2D
#pwme #mecfs @mecfs
This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…bit.ly
ME Research UK:
Highlights of the International ME/CFS Conference 2026 included a presentation on the results from the DecodeME study and discussion of next steps, and a presentation on whole-body positron emission tomography (PET) scans for ME/CFS.
Read more: tinyurl.com/2crj6zd6
On the 7th and 8th of May, the International ME/CFS Conference 2026 took place in Berlin and online, and ME Research UK was in attendance remotely.tinyurl.com
Image is extract from new US study that sounds interesting (but I don't understand)
Association of Coronary Vasomotor Disorders and ME/CFS in Patients Undergoing Invasive Cardiopulmonary Exercise Testing
academic.oup.com/ajrccm/articl…
Invasive Cardiopulmonary Exercise Testing allows more interesting data to be collected than ordinary exercise testing.
From Germany:
Symptom clusters in ME/CFS reflect distinct neuroimmune and autonomic pathophysiological mechanisms: a translational model
link.springer.com/article/10.1…
Screenshot from Science for ME weekly update
Dr Amolak Bansal & I
I knew I wouldn't be able for whole Dublin event so only arrived at end of Q&A session but all feedback I've heard about his talks has been positive.I enjoyed chat I had with others
@IrishMECFSAssociation meetings left: Sat in Galway & Sun in Sligo.
#MEAction:
We Made Real Progress at #MillionsMissing — Here's What's Next
Update on the May 12th event at the HHS headquarters in Washington, DC, and a report on getting funding for the ME/CFS Research Roadmap.
I was fortunate to experience a nice family #BlueSunday2026 #TeaPartyForME2026 celebration yesterday in aid of the Irish ME/CFS Association @IrishMECFSAssociation
idonate.ie/fundraiser/BlueSund…
Thanks to my mum for all the work she put in organising it and to everyone who attended. 👍👏
#MEcfs #PwME #CFS #BlueSunday @mecfs
Blue Sunday 2026 for the Irish ME/CFS Association for Irish ME/CFS Association, created by Irish ME/CFS Association | iDonate.ieOnline Charity & Non Profit Fundraising Services
Delighted to get this coverage in the Sunday World, one of the newspapers with the largest readership in Ireland
"Do no harm: supporting people with ME/CFS"
csp.org.uk/frontline/article/d…
"How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? Physios for ME offer their thoughts"
Thanks to my mum for getting everything ready for our family
#TeaPartyForME2026 on #BlueSunday2026 (on Sunday).
We’re doing it in aid of the Irish ME/CFS Association @IrishMECFSAssociation
idonate.ie/fundraiser/BlueSund…
but other worthy charities are available (see:
the-slow-lane.com/donation-pag… )
#MEcfs #CFS #PwME #BlueSunday @mecfs
Every year people use ‘Blue Sunday’ as an opportunity to donate to an M.E. charity or cause. Donate via the links below Below, I’ve compiled a list of donation pages to make it ea…Anna ('M.E. myself and I' by Anna)
Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
cfp.ca/content/exercise-may-ca…
[I have not included the full text in the screenshot]
#Fibromyalgia #MEcfs #PwME @mecfs
90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS
Universal links:
msn.com/en-us/health/medical/s…
or
youtube.com/watch?v=7T91vSdfL5…
This link won't work for many people:
koat.com/article/study-says-ch…
Study says chronic fatigue syndromeKOAT Action 7 News is your home for New Mexico breaking news and weather. For your latest New Mexico news and weather visi...KOAT (YouTube)
UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"
gov.uk/government/news/thousan…
People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study.Department of Health and Social Care (GOV.UK)
I had a stressful dream last night, maybe appropriate for May 12! In the dream, I have a new or stand-in GP [family physician] and I am trying to persuade them to sign a disability form. They are smirking away, not very sympathetic. So I have to list my symptoms and losses over the years.
