Search

Items tagged with: PwME

The media in this post is not displayed to visitors. To view it, please go to the original post.

News Release 26-May-2026:

"Mayo Clinic study details set of options family medicine physicians may consider to treat ME/CFS and long covid"

eurekalert.org/news-releases/1…

Paper:
annfammed.org/content/annalsfm…

#MEcfs #LongCovid @longcovid #PwME #ME #MyalgicE
@mecfs

Mayo Clinic study details set of options family medicine physicians may consider to treat ME/CFS and long covid

 U.S. prevalence of chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), a multisystem neurologic disease and debilitating chronic condition, averaged 1 million to 2.5 million before the COVID-19 pandemic.
EurekAlert!
#longcovid #mecfs #pwme #me #myalgice @ME/CFS @Long Covid

#longcovid #mecfs #pwme @ME/CFS @Long Covid @Science for ME Forum

#mecfs #pwme @ME/CFS

Emerge Australia:
Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

"PEM is real. It is serious. And it must not be made worse by misunderstanding."

Signed by researchers, clinicians and advocates.
emerge.org.au/wp-content/uploa…

#PEM #MEcfs #CFS #PwME @mecfs

#mecfs #pwme #cfs #PEM @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

Read more: bit.ly/42bpC2D

#pem #mecfs #cfs #pwme @mecfs

ME Awareness week 2026 – Research

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…
bit.ly
#mecfs #pwme #cfs #PEM @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

From ME Awareness Week.
tinyurl.com/MEAW2026

The experience of cognitive dysfunction, ‘brain fog’, cannot be equated to the occasional forgetfulness and lapses in concentration experienced by healthy individuals.

How does 'brain fog' impact your daily life?👇

#mecfs #cfs #pwme #brainfog @mecfs

ME Awareness Week 2026 – Overview

ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.
tinyurl.com
#mecfs #pwme #cfs #brainfog @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

This week, ME Awareness week 2026, ME Research UK are considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

Today, the focus is on Brain fog (also known as cognitive dysfunction): bit.ly/42bpC2D

#brainfog #mecfs #cfs #pwme @mecfs

ME Awareness week 2026 – Research

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…
bit.ly
#mecfs #pwme #cfs #brainfog @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

From ME Awareness Week.
tinyurl.com/MEAW2026

Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

How does fatigue impact your daily life?👇

#mecfs #cfs #fatigue #pwme @mecfs

ME Awareness Week 2026 – Overview

ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.
tinyurl.com
#mecfs #pwme #cfs #fatigue @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

Credit to themsbloke. A high-energy video that might require pacing!

He has multiple sclerosis himself rather than ME/CFS.

Note that the F word is used.

#MEcfs #PwME #MyalgicEncephalomyelitis #ME #MyalgicE
@mecfs

#mecfs #pwme #myalgicencephalomyelitis #me #myalgice @ME/CFS

#mecfs #pwme #me #myalgice @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

Today, the focus is on fatigue: bit.ly/42bpC2D

#mecfs #cfs #fatigue #pwme @mecfs

ME Awareness week 2026 – Research

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…
bit.ly
#mecfs #pwme #cfs #fatigue @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

From ME Awareness Week.
tinyurl.com/MEAW2026

Unrefreshing sleep is a common issue in ME/CFS, where a full night's sleep, doesn't leave one rested. There can also be other changes in sleep quality/quantity/patterns.

How does sleep dysfunction impact your daily life?👇

#mecfs #cfs #pwme @mecfs

ME Awareness Week 2026 – Overview

ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.
tinyurl.com
#mecfs #pwme #cfs @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

As part of ME Awareness week 2026, ME Research UK have put together a series of articles considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

Today, the focus is on sleep difficulties: bit.ly/42bpC2D

#mecfs #pwme #cfs @mecfs

ME Awareness week 2026 – Research

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…
bit.ly
#mecfs #pwme #cfs @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

From ME Research UK:

Whilst symptoms and comorbidities of ME/CFS are debilitating, the disease can be isolating due to factors such as disbelief from others and lack of accommodation. tinyurl.com/MEAW2026

How has ME/CFS impacted you?👇

#mecfs #pwme @mecfs

ME Awareness Week 2026 – Overview

ME Awareness Week takes place every May during the week of May 12th, which marks International ME Awareness Day.
tinyurl.com
#mecfs #pwme @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

From @meresearchuk

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made, & challenges faced when investigating key symptoms of ME/CFS, a disease which affects over 400,000 people in the UK. Read more: bit.ly/42bpC2D
#pwme #mecfs @mecfs

ME Awareness week 2026 – Research

This week, for ME Awareness week 2026, ME Research UK has published a series of articles discussing the progress made—and challenges faced—when investigating the four key symptoms of ME/CFS which are required for a diagnosis to be made under the 2021…
bit.ly
#mecfs #pwme @ME/CFS @users/meresearchuk

The media in this post is not displayed to visitors. To view it, please go to the original post.

ME Research UK:

Highlights of the International ME/CFS Conference 2026 included a presentation on the results from the DecodeME study and discussion of next steps, and a presentation on whole-body positron emission tomography (PET) scans for ME/CFS.

Read more: tinyurl.com/2crj6zd6

#mecfs #pwme @mecfs

Highlights from the International ME/CFS Conference 2026, including Decode ME & PET

On the 7th and 8th of May, the International ME/CFS Conference 2026 took place in Berlin and online, and ME Research UK was in attendance remotely.
tinyurl.com
#mecfs #pwme @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

Image is extract from new US study that sounds interesting (but I don't understand)

Association of Coronary Vasomotor Disorders and ME/CFS in Patients Undergoing Invasive Cardiopulmonary Exercise Testing

academic.oup.com/ajrccm/articl…

Invasive Cardiopulmonary Exercise Testing allows more interesting data to be collected than ordinary exercise testing.

#MEcfs #PwME #ME #MyalgicE
@mecfs

#mecfs #pwme #me #myalgice @ME/CFS

#mecfs #pwme #me #myalgice @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

Dr Amolak Bansal & I

I knew I wouldn't be able for whole Dublin event so only arrived at end of Q&A session but all feedback I've heard about his talks has been positive.I enjoyed chat I had with others

@IrishMECFSAssociation meetings left: Sat in Galway & Sun in Sligo.

#MEcfs #PwME #ME #MyalgicE
@mecfs

#mecfs #pwme #me #myalgice @ME/CFS @Irish ME/CFS Association

#mecfs #pwme #cfs #meaction #millionsmissing @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

I was fortunate to experience a nice family #BlueSunday2026 #TeaPartyForME2026 celebration yesterday in aid of the Irish ME/CFS Association @IrishMECFSAssociation

idonate.ie/fundraiser/BlueSund…

Thanks to my mum for all the work she put in organising it and to everyone who attended. 👍👏

#MEcfs #PwME #CFS #BlueSunday @mecfs

Support Blue Sunday 2026 for the Irish ME/CFS on iDonate.ie

Blue Sunday 2026 for the Irish ME/CFS Association for Irish ME/CFS Association, created by Irish ME/CFS Association | iDonate.ie
Online Charity & Non Profit Fundraising Services
#mecfs #pwme #cfs #teapartyforme2026 #bluesunday2026 #bluesunday @ME/CFS @Irish ME/CFS Association

The media in this post is not displayed to visitors. To view it, please go to the original post.

Delighted to get this coverage in the Sunday World, one of the newspapers with the largest readership in Ireland

#MEcfs #PwME
@mecfs

#mecfs #pwme @ME/CFS

#medmastodon #mecfs #pwme #physio #PEM #pese @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

Thanks to my mum for getting everything ready for our family
#TeaPartyForME2026 on #BlueSunday2026 (on Sunday).

We’re doing it in aid of the Irish ME/CFS Association @IrishMECFSAssociation
idonate.ie/fundraiser/BlueSund…
but other worthy charities are available (see:
the-slow-lane.com/donation-pag… )

#MEcfs #CFS #PwME #BlueSunday @mecfs

‘Blue Sunday’ Donations

Every year people use ‘Blue Sunday’ as an opportunity to donate to an M.E. charity or cause. Donate via the links below Below, I’ve compiled a list of donation pages to make it ea…
Anna ('M.E. myself and I' by Anna)
#mecfs #pwme #cfs #teapartyforme2026 #bluesunday2026 #bluesunday @ME/CFS @Irish ME/CFS Association

Hope to see some of you at the Dublin meeting tomorrow. I don’t have the energy for the whole event so I will lie in the back of our car till part way through the Q&A section to be around for chat section. Do come over and say hello if you are there. 👋
#MEcfs #PwME @mecfs
#mecfs #pwme @ME/CFS

#mecfs #pwme #fibromyalgia @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

Universal links:
msn.com/en-us/health/medical/s…
or
youtube.com/watch?v=7T91vSdfL5…

This link won't work for many people:
koat.com/article/study-says-ch…

#MEcfs #PwME #CFS @mecfs

Study says chronic fatigue syndrome

Study says chronic fatigue syndromeKOAT Action 7 News is your home for New Mexico breaking news and weather. For your latest New Mexico news and weather visi...
KOAT (YouTube)
#mecfs #pwme #cfs @ME/CFS

The media in this post is not displayed to visitors. To view it, please go to the original post.

UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

gov.uk/government/news/thousan…

#MEcfs #PwME #CFS @mecfs

Thousands of ME/CFS patients to benefit from first genomics study

People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study.
Department of Health and Social Care (GOV.UK)
#mecfs #pwme #cfs @ME/CFS

I had a stressful dream last night, maybe appropriate for May 12! In the dream, I have a new or stand-in GP [family physician] and I am trying to persuade them to sign a disability form. They are smirking away, not very sympathetic. So I have to list my symptoms and losses over the years.

#MEcfs #May12 #May12th #WorldMEday #pwme @mecfs

#mecfs #may12 #may12th #worldmeday #pwme @mecfs

This website uses cookies to recognize revisiting and logged in users. You accept the usage of these cookies by continue browsing this website.

⇧